Yesterday was my first MS walk. The love of my life has long been living with the disease. Now we live it together. Together means him and I and him and I and "others". There is no dismissive connotation in the category of other. There is no hiearchy of significance in who gets impacted by this more or worse. What a sick sort of contest that would be and who would want to win the "this hurts me more than it does you" contest. We are all in this together yet we are all concerned about ourselves. There is much to do and much to balance out to stay sane and healthy.
So far what I've learned is that at different times different things are important. We are best served when we honor that. When it is time to read drug medication literature, something else has to wait. And when we need a break and want to be alone, the drug medication literature stays home and the phone goes off. Yesterday was not one of the days to run and hide. It was a day that included some of those others. These were people I did not know. I may have nothing in common with them but this one thing...they were there to support a commom cause. MS. When we arrived they asked us to write on our walkers bib. It prompted us to complete the sentence "I walk for......". I became emotional at the sight of strangers speaking of other strangers who wrote.."I walk for myself and those who can't". And my love wrote "I walk for me and Lisa and family and friends". He wants to be well for US. I want him to be well, I want me to be able to help him be well, I want the others in our life to help us help them understand this all. Sometimes Kurt and I will walk, and sometimes we run. The best days are all, we feel like we can fly. We are very lucky despite what others may think.